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EB Awareness Week
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Life After Tyler


I am dreading next week. Every year I completely remember everything that happened from 2/8 to 2/14 and it sucks!!! 17 years later and it's only a little easier. Maybe T wants it that way so I do not ever stop trying to get the word out about EB. That I never stop trying to find a cure so all of those kids do not have to suffer the way he did. It is very hard most of time though to keep going. I am such a very small fish in a very LARGE pond. Miss you Tyler!!

2 Comments to Remembering:

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essays study moose on Friday, November 8, 2019 3:16 AM
Definitely, spending and living life becomes very difficult when our beloved one dies. I can imagine your grief because I have also lost something precious to me like Tyler to you. This is the worst feeling one can ever imagine in his life.
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Trisha on Monday, November 18, 2019 8:58 PM
Praying for you!

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