RSS Follow Become a Fan

Delivered by FeedBurner

Recent Posts



EB Awareness Week
powered by

Life After Tyler

Happy Birthday

Happy birthday Tyler. Today would have been your 18th birthday. I can not believe that you have been gone for over 17 years already. I try to picture what you would look like. And I try to imagine how you would interact with my kids. I still miss you very much! I am still trying to get the word out so that everyone knows what EB is. It is a very hard struggle! 
Please continue to bless all of the children here on earth that have to live with EB everyday. You know what a struggle it is! Watch over them from heaven little man! I love you Tyler!! 

4 Comments to Happy Birthday:

Comments RSS
bestessays review on Friday, December 14, 2018 12:59 AM
My deepest condolences. It is really hard to lose someone you love, especially if you shared a lot of special moments together. I know it is very, very hard for parents to lose their child. I may not be very knowledgeable of how painful can that be but I deeply and sincerely sympathize. Epidermolysis bullosa is a very rare and very painful disease. Kids like Tyler do not deserve to suffer such pain. Or any people in this world. I hope this blog succeeds in raising awareness against Epidermolysis bullosa. God bless you.
Reply to comment
Trisha on Wednesday, June 5, 2019 8:11 PM
Thank you so very much! I pray I am making a difference somehow! And you are right, no one should have to endure EB! Thank you again for visiting the website and keep sharing awareness & prayers.

careers booster review on Friday, May 17, 2019 8:42 PM
First of all, I would like to express my deepest condolences. I know how hard it must have been for you and for the whole family when Tyler has passed away. I would also like to say how inspiring you all are. You have become brave enough to face this and the good thing is you have overcame all the pain and heartache that you have all experience. Anyway, I know that Tyler is now in good hands. He is even smiling knowing that you are now living a life that is full of love. Losing is someone is never easy and it might take time to accept what had just happened but take heart because everything has a purpose.
Reply to comment
Trisha on Wednesday, June 5, 2019 8:20 PM
Thank you. I still miss my nephew. I would not mind if that week in Feb just disappeared so I am not sure all of my heartache is gone. And that is very kind of you to say I am inspiring, don't always feel that way. I hope I can make this life better for all of those suffering with this horrible disease. I forever feel that I do not do enough but I guess that is what prompts me to keep marching forward to spread awareness.

Add a Comment

Your Name:
Email Address: (Required)
Make your text bigger, bold, italic and more with HTML tags. We'll show you how.
Post Comment