-
RSS Follow Become a Fan

Delivered by FeedBurner


Recent Posts

Awareness
Wishes
Prayers
8/13/16
Angry

Categories

EB Awareness Week
February
Welcome
powered by

Life After Tyler

National EB Awareness Week

Hi All- National EB Awareness Week is 10/25/14-10/31/14. Please make a difference. Like any EB page on Facebook and share with your friends. Ours is Tyler's EB Awareness. Share any EB website with your contact list. Email your local paper to write a story, email your local news station to run a segment. Spread the word about EB so that more will take interest. There needs to be more awareness so that a cure can be found. 
It was so frustrating watching 60 Minutes last night. They were talking about genetic testing and kept mentioning diabetes and different kinds of cancer--- WHAT ABOUT EB????? Mention EB for gods sake!!! UUUGGGHHH.
I understand that those diseases are terrible but have you seen an EB child. To watch an innocent victim suffer. It is horrible!!! Please make a difference this week. Make a donation to an EB organization or even share awareness. The more that know the better those kids will be! 

12 Comments to National EB Awareness Week:

Comments RSS
bestessays on Monday, September 24, 2018 11:09 AM
We should spread the awareness. You were right, friend. You are very honest.
Reply to comment
 
essay writers sydney on Tuesday, April 23, 2019 9:54 AM
This type of diseases is in need to have a massive increase of awareness to all the people. There is a lot of diseases right now and it kills a lot people in the community. Hopefully this type of cause celebrating EB awareness week will be a useful to everyone. Many families are suffering with so much pain not just in financial curing the disease but of course emotional and physical burden. There is many advocacy that wants to cure the disease and we can be part of it.


Trisha on Wednesday, June 5, 2019 1:04 PM
Thank you!


Anonymous on Monday, October 1, 2018 12:12 PM
Thank you.
Reply to comment
 
Trisha on Wednesday, June 5, 2019 1:04 PM
No thank you for your time.


best uk writing services on Tuesday, November 13, 2018 11:01 PM
We will make a difference together. I believe in that. What about you?
Reply to comment
 
Trisha on Wednesday, June 5, 2019 1:05 PM
I hope so...


ukbestessay on Friday, January 18, 2019 4:07 AM
I always participate in National EB Awareness because it is really hard to have this kind of disease. We cannot also cure them, but we can share some donations that they need in order to make life more convenient. We do not know what they really feel, but we can lessen the bad things that they are experiencing. We are blessed that we do not experience this. Let us make ourself a blessing to people like them just to let them feel that they should fight for their life.
Reply to comment
 
Trisha on Wednesday, June 5, 2019 8:25 PM
Thank you so very much for your EB advocacy! It is very appreciated.


best essay services online on Monday, June 17, 2019 2:52 PM
Epidermolysis Bullosa is a rare disease that has no cure. This disease is caused by easy blistering of the skin and to those who have fragile skin. It is important for us to know this certain disease to be aware of. “Prevention is better than cure.” So before this rare disease will strike us, it is important to be aware and know what will be the symptoms of this said disease. So let us all join this “National Epidermolysis Bullosa Awareness Week”!
Reply to comment


hobart plasma cutter reviews on Tuesday, June 23, 2020 6:42 PM
https://plasmacutterinsider.com/best-hobart-plasma-cutter/;Howdy! This article could not be written any better! Going through this article reminds me of my previous roommate! He continually kept preaching about this. I most certainly will forward this post to him. Fairly certain he'll have a great read. I appreciate you for sharing!
Reply to comment


what does premium do in roblox on Friday, July 24, 2020 11:13 AM
Great article! Very informative blog. This was very helpful! Thank you so much for this!
Reply to comment

Add a Comment

Your Name:
Email Address: (Required)
Website:
Comment:
Make your text bigger, bold, italic and more with HTML tags. We'll show you how.
Post Comment