-
RSS Follow Become a Fan

Delivered by FeedBurner


Recent Posts

Awareness
Wishes
Prayers
8/13/16
Angry

Categories

EB Awareness Week
February
Welcome
powered by

Life After Tyler

Feb 11th

I absolutely hate this week!!! Hard to believe it has been 18 years. At least I do not cry like I used to, but I still remember that horrible time. From going into the hospital, him being torn up from being shocked with the paddles, hooked up to all those machines, waiting for results, hearing the doctors say that four days later his brain was not done swelling, to hearing the decision to take him off the machine because he should not have to suffer anymore! Things that you see that you cannot erase from your memory. Thinking about how he felt because he could not tell us, what he went through, losing him. He spent most of his 6 months on this earth at the hospital and had only been home for a week. I know he’s in a better place & has been for 18 years but it’s a shame that we only got to have him here with us for 6 months and it was such a terrible 6 months for him. He was such a fighter, even at the very end! Me and Jason did not EVER give up on him until God took him in his arms Feb 11th, 1997 @ 8pm.

We need to find a cure!!!! No child- no family should ever have to go through this horrible disease!! With awareness & testing it can be prevented. It will be in my family going forward!

Please everyone share something about EB with all of your friends, contacts, family. Spread the word so that we can get funding for more research, bring EB to the forefront!! Every little bit helps to be closer to the END of Epidermolysis Bullosa!!!


10 Comments to Feb 11th:

Comments RSS
Bradon on Tuesday, September 11, 2018 4:55 AM
You have shared very valuable content.
Reply to comment
 
Trisha on Wednesday, June 5, 2019 8:36 PM
Thank you. Please let me know if there is anything that could be added to make the website better.


online essay writing service on Wednesday, March 27, 2019 4:04 AM
Definitely, your story is very awful which made very sad at the moment and truly I am weeping right now. I know the difficulties of such conditions because I have gone through such conditions many times in life.
Reply to comment
 
Trisha on Wednesday, June 5, 2019 8:38 PM
Praying for you. God bless.


Chicago Stem cell Therapy on Monday, June 24, 2019 2:26 AM
This is really great information found here, I really like your blog. Thanks very much for the share. Keep posting.
Reply to comment
 
Trisha on Monday, November 18, 2019 8:55 PM
Thank you!


Sciatica Pain Frankfort on Monday, June 24, 2019 7:23 AM
Hello admin! This is remarkable article as well as it is valuable for the entire person and I want to say that I would like to write on this subject too. You have an interesting written of this topic.
Reply to comment
 
Trisha on Monday, November 18, 2019 8:56 PM
Thank you!


192.168.l.254 on Thursday, December 5, 2019 3:37 AM
I am very glad to read the post,it is very well written.You have done hard work in writing this post and i impressed your work. Thanks a lot.
Reply to comment


Help me write my biography on Tuesday, March 17, 2020 11:33 AM
I find this blog to be very educative. Thank you very much for sharing this. It may be short but it is very informative.
Reply to comment

Add a Comment

Your Name:
Email Address: (Required)
Website:
Comment:
Make your text bigger, bold, italic and more with HTML tags. We'll show you how.
Post Comment