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EB Awareness Week
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Life After Tyler

EB Awareness Week

Hi- EB Awareness week is 10/25-10/31/15. 
Please help however you can:
Donate- there are so many great organizations that help EB families and research
Spread the Word- the more attention EB gets the more funding and research it will get
Fundraise- put together an event or even sell candy bars
Anything or everything is welcome and will help some child suffering from this horrible disease!! EB must be cured. There is a great fundraiser that EBMRF is doing right now- here are the details:

One Lucky Winner and a guest will get a chance to meet Ed Sheeran and watch him perform at a private event in Malibu on Sunday, November 15. Proceeds benefit The Epidermolysis Bullosa Medical Research Foundation’s mission to fund a cure for this life threatening and debilitating genetic disorder (www.ebkids.org).
Donate $10 on www.crowdrise.com/rock4eb for a chance to attend (plus up to $1,000 to help cover travel and accommodation costs). This is the ONLY pair of tickets being made available to the public for this event.  You can donate as many times as you'd like to increase your chances to win ($10 one chance,  $50 five chances, etc.).
Feel free to share this campaign with other people and help raise awareness for EB!
This campaign closes November 6th.

Till next time #CureEB

2 Comments to EB Awareness Week:

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aussie writers on Thursday, January 24, 2019 2:57 AM
Nice time passed on this page while reading this glorious article right now along with colleagues. About EB families this is very new info for me and for my fellows here who are discussing about EB families with each other.
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Trisha on Wednesday, June 5, 2019 9:06 PM
Thank you for visiting the website. Hope you found it informative. And I hope that you share because that is the only way we will win this fight with EB.

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