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EB Awareness Week
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Life After Tyler


Hi- ok I am going to try to write something everyday. Tyler has been heavy on my heart lately. Maybe it is because I have liked or joined more EB sites on Facebook and Twitter so I am seeing more and more pics of what these poor kids have to go thru. Or maybe because we had another awareness week come and go without him. There have been 18 of them. Where has the time went??? I often wonder what he would look like, whether like Jeff or Lori? And how tall he would be? And how much my kids would love him. And then I think maybe him leaving us so early was God's way of answering our prayers, well my prayers. I prayed every day for him not to have to suffer any longer to be cured. That is what he did by taking Tyler with him, he cured him. But I guess I am selfish- I wanted him to cure Tyler down here. Then I wonder what life would have been like for the last 18 years. I know I have spent a lot of time crying. Crying for missing him, crying for all of the kids and adults who have to suffer, crying for all of the time that has passed and still not everyone knows what EB is and most of all crying because of all of the people who turn a def ear or blind eye to what EB patients have to go thru and staying ignorant because it is easier than spreading awareness. What they do not realize is that 1 in 30,000 have it. That is a lot of people walking around without a clue. Only when they have a baby with someone or someone in their family has an EB child will anyone know. Ok I am balling my eyes out and can not see to type any more tonight. Prayers to all of those who have to suffer from EB that a cure will be found so that they can live a long happy life with their families pain free. Prayers to all of those family members who have to watch their loved ones suffer that God grants you peace and support. And prayers that a cure for this terrible disease will be discovered soon!!! 

5 Comments to Prayers:

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mba assignment help on Sunday, August 26, 2018 12:56 PM
More awareness and wonderful life process it can be long chances and happy topics always for curing prayers. The people are walking and making the informative billing process and money issues with us.
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uk bestessay on Wednesday, October 24, 2018 11:49 PM
It can really be hard to miss someone so much. According to a PSychologist in the University of Kansas missing someone creates a negative toxin in the body that the brain produces. It can only be overwritten by taking in some positive thoughts and chocolates. Chocolates provide and triggers the production of dopamine in the brain. It activates the reward or happy portion of the brain. So I suggest that maybe having some sweets would help you overcome your sadness.
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Trisha on Wednesday, June 5, 2019 9:08 PM
Thank you.

australian essay writing service on Thursday, March 14, 2019 9:56 AM
How effective are these prayers? Tell me about them. Is there a reason for them?
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Trisha on Wednesday, June 5, 2019 9:11 PM
Sometimes they are, sometimes they're not but that is when faith steps in to keep you going.

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