Trying to relive this week so he is not forgotten. I ABSOLUTELY hate this week of the year!!!!
......so we were so happy that he was home. I think I was able to visit him once this week. I remember praying that some of the swelling from the steroids would go down and that he would eat. I did not want him to go back to the hospital.
I wish I would have known what was coming. I know I would have spent every minute with him. And who knows, if I would have been there then she wouldn't have been. I know I am not the only person in Tyler's life who thinks that she had something to do with it. I guess only her, Tyler and God know the truth. I know that God has a plan for everything, but sometimes it is really hard to believe, to have faith without understanding.
Even after 19 years I still do not understand why this little beautiful boy had to suffer the way he did and leave us so soon. Why other beautiful little kids have to suffer on a daily basis. Why the parents and siblings have to suffer everyday with the agony of this disease. I guess my thoughts for today is EB SUCKS!!!