RSS Follow Become a Fan

Delivered by FeedBurner

Recent Posts



EB Awareness Week
powered by

Life After Tyler


Trying to relive this week so he is not forgotten. I ABSOLUTELY hate this week of the year!!!!
......so we were so happy that he was home. I think I was able to visit him once this week. I remember praying that some of the swelling from the steroids would go down and that he would eat. I did not want him to go back to the hospital. 
I wish I would have known what was coming. I know I would have spent every minute with him. And who knows, if I would have been there then she wouldn't have been. I know I am not the only person in Tyler's life who thinks that she had something to do with it. I guess only her, Tyler and God know the truth. I know that God has a plan for everything, but sometimes it is really hard to believe, to have faith without understanding. 
Even after 19 years I still do not understand why this little beautiful boy had to suffer the way he did and leave us so soon. Why other beautiful little kids have to suffer on a daily basis. Why the parents and siblings have to suffer everyday with the agony of this disease. I guess my thoughts for today is EB SUCKS!!!

5 Comments to 2-2:

Comments RSS
wizessays on Monday, November 5, 2018 9:10 AM
The communicative thoughts and prepares about updating the understanding steroids praying the chances. The technical siblings and effective more disease for learning the teaching skills.
Reply to comment

Chicago Stem cell Therapy on Monday, June 24, 2019 2:26 AM
This is really great information found here, I really like your blog. Thanks very much for the share. Keep posting.
Reply to comment

handmadewriting review on Wednesday, September 25, 2019 12:46 PM
this is this kind of beatific resource which you are providing and you come back to an goodwill it away for forgive. I hero worship seeing weblog that acquire the price of presenting a mood useful resource for clean.
Reply to comment

vivienneswestwoodoutlet.co.uk on Tuesday, November 12, 2019 9:27 PM
I know I am not the only person in Tyler's life who thinks that she had something to do with it.
Reply to comment

webstagram on Monday, December 2, 2019 2:59 AM
Great post , I am so impressed to read your views which you have shared with us. and we also share site webstagram about instagram, please go to
Reply to comment

Add a Comment

Your Name:
Email Address: (Required)
Make your text bigger, bold, italic and more with HTML tags. We'll show you how.
Post Comment