Hi - I hope that everyone had a wonderful Christmas. I hope that the true meaning of Christmas was heard in your household. And I want to wish everyone a year full of blessings and miracles for 2017. I pray for everyone daily but especially for the EB community. May God bless us with a cure in 2017 so no more have to suffer on a daily basis whether it be kids, adults, family, caregivers.......
Tyler I will never give up, I will never stop praying, I will never forget!